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Posts Tagged ‘crossbite’

I was visiting my doctor today. She checked me up and we had a long talk about my close future. Obviously, she got papers from the hospital and they were really long detailed ones. We talked about the whole surgical plan and about my other 2 (actually maybe 3 :() planned surgeries.

I am currently jobless and in a way, I love it, because I do not have to hurry and overstrain myself at work, but I feel that I should be doing something for my career. There is so much I would like to archieve.

But going to an interview is not an option for me. I can not speak properly, I look horribly, not to mention I can not carry heavy things or overstrain myself. So I can not do a job I am qualified for, I can not do jobs that require manual work… and going to interviews for editor/writer position will be of no use, because honestly, noone finds a seriously lisping creature with a huge gap between her teeth and un-closable mouth a perfect colleague, lol. And then there is the pain – normally it is ok, but I am still having some bad moments. (But hey, I can at least breathe through my nose without problems! Hire me? Please? Pretty please?)

I am now on some sort of sick leave after the surgery, but my doctor told me, that I could have problems with the employment office where I am registered, if she leaves me at the sick leave too long. Honestly. Does it have any sense to take a job, if I am 100% sure I have to go to doctors every now and then? (My next visit is in 14 days, but when braced and starting the preparation for 2nd surgery, I will be there at least once a week which usually takes few hours) Not to mention I am sure I will be on sick leave again after the surgery. My health is a funny thing – I heal quite well, but I keep getting rare complications. Honestly, if I grew frog’s legs or rhino horn after my next surgery, I would not be surprised, lol.

So, my doctor things I should ask for a sort of disability pension until the surgeries are done. She says I am in such a state, that it should be possible. Honestly… I do not know. It definitively is an option that would make my life easier, but then… disability? Getting disabled after facial surgery, now that is rich. Anyway, I can not say I am not thinking about it. It would be nice to just go through the surgeries without any worries about job, getting back to work or getting scolded by the employment office for being on sick leave for too long. So… well, I might get legally disabled for a while – about a year.

Thanks to the Gackt surprise yesterday, I forgot to share what happened to me lately. I visited the hospital and an orthodontist had a look at my palate and teeth (my ortho was somewhere away, I think some congress) and said everything was ok. Even if the halves of my palate are uneven and there is a 2mm step-off in the middle. She says they will correct it by fixed braces. The band that looked like it was slipping off my last molar seems to be ok to her and she says there is no way of preventing it from cutting my cheek. Great. I will just help myself as I did before, gah. When I said that the step-off in the middle of palate hurts, she poked it. OUCH! Then she took this dental hook that they use to probe teeth for cavities with and… I got all pale and was prepared to bite her fingers off if she tries to poke the palate and the bone, but she did not in the end. Anyway, no help from them, gah. I am sure it is some sort of rare complication as usually… and that as usually, they will find out too late. For some reason, I am somehow resigning to it.Β  I am really tired of it to be honest.

I also had a nightmarish experience this Wednesday. I went to help gran to bring some apples from her friend’s garden. I would not normally try to overstrain myself like that, but I just could not let the old lady carry them. Anyway, when we went there, the woman’s dog was running behind the fence and barking. I asked the woman if she could lock him in his kennel just for a while, explaining that I am after surgery and if he jumped at me or something, I might have serious problems. Gran said he wont do anything to me, but I was decided to not get in until he is away. That is when it happened. The old lady went to lock him, but he ran away from her and as my gran was telling me to go in, she left the gate open. The dog, a huge yellow mix of Irish wolfhound and something just a little smaller, ran out of the garden and… it attacked me. I have no idea why, maybe it felt that I feared it. Anyway, I just managed to scream and turn to the fence quickly and the next moment I had a huge creature on my back, growling, barking and baring it’s teeth. He did not bite me, but I got some nasty scratches from his claws. The worst was, his weight knocked me against the fence and gate. Only thanks to good luck, I did not smash my face against it. When they caught him and dragged him away, I was so scared I was shaking all over and could not calm down for a while. I remember saying something about “Fucking bloodthirsty beast”, lol. The lady said that the dog never ever attacked anyone before like this. I guess it is just my damn bad luck then.

Anyway, in the end, I am whole and so is my jaw. Nothing really serious happened to me. The next time any dog will try to do something similar, I will bite him too. Oh, damn… wait… I can not bite him with my upper jaw like this… hmm… ok, next time I will drop my jaw and use it to slice his throat open then, lol. Now that would be scary.

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I was released from hospital yesterday (monday, 9:30 am precisely). Yay!

I visited my best friend who is ill, so she could not visit me in hospital and we spent few ours talking, laughing and browsing papers with notes (well, drawings and jokes made during the classes) from the time when we were still classmates. I also drank a bowl of miso soup and petted kittens while there πŸ™‚

When I reached my bf’s flat, I was half dead from fatigue. Taking buss with sore jaw can be a littletiring experience, also carrying my notebook and all my things by myself did not help, so I just took shower and laid down (well, kepst switching between lying in bed and sitting by PC).

After the horrible blended food period in hospital, especially the last few days were filled with inedible grey mash thingy for food routine, a piece of bolognese pate felt like heavenly gift πŸ™‚

I woke up before 8am today. I blame the hospital routine with it’s 5am waking for pills, 6am waking for temperature check and 7 am waking for bed dressing change, hygiene and preparing for doctor’s visit at 8am. When you went to breakfeast at 8:15 or 8:30, you were not sleepy at all anymore.

Today’s turning of Hyrax screw was a little pailful on the right side (usually it was the left one) and I was a little worried, because my inner ear started hurting as well. Felt like it was all cramped somewhere deep inside, but my doctor instructed me before, that it might happen and happens when I have scars somewhere on the bone and the pressure is a little bigger on one exact spot, so I endured it and it was fine in about a hour or so.

The gap between my front teeth is HUGE! It is about 4mm by now and there are still at least 3 to go. I am visiting my dentist/orthodontist Thursday morning and she will check if I should stop turning by then or keep it. Then 3 months of stabilization and then full braces.

I also managed to talk to my reconstructive surgeon yesterday and he said my second surgery should take place sooner than in one year, as my dentist proclaimed, probably in 6 months or so. Also it will have to be split in two – fist the maxfac surgery on my upper jaw: Full Le Fort I and upper jaw advancement forward by cca 8mm. When it is done, I should have my other one done – I should get customized Porex Medpor cheekbone and orbital rim implants (worth an older car, lol). I need customized ones, because the widely sold ones would not cover my deficiency enough. I do not have to pay for the implants, because I will be clinical study subject and the implants will be donated to me by the company that distributes them in Czech republic. It of course comes with some obligations to the company, but that is fine with me πŸ™‚

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Sorry for the delay, I was not feeling well. Delayed post surgery shock creeped on me and I also happened to have stomach problems and headache, so I spent most of my time in bed. I just would like to say that this is not a common complication and even doctors were surprised.

We also started turning the screw by 0,2 mm 3 times every day.

I was really scared when we were about to turn it the first time, especially because I overally felt very bad and was not in mood for another pain/nuisance. After the checkup from doctors Thursday morning, they called me “to the chair” (yes, THAT nasty mean evil dentist chair of dread, lol) and my dentist came to instruct me and turn the screw. The turning went strangely smooth. It did not hurt much, but created a lot of pressure on the Hyrax and therefore also on my teeth and palate. I had a really weird feeling in between my front teeth, where the gap was to form later and also felt a little sick from the pressure, but nothing major. Overally, I was happy everything goes so well.

The pressure and irritated feeling stopped after about 2 hours (or maybe I got used to them?) and after 5 hours, I was prepared for another turning. After 4 turns, I was fine and did not get sick-ish from it anymore.

I had to turn it the first time by myself yesterday and to be honest, I was surprised that you have to use a lot of power to turn the screw, yet it does not hurt. I had problem with my Hyrax key (long and good for the docs to use, but not too good for turning the Hyrax on yourself), so an older doctor came and thought out a way for me. I got a tiny finger key that I can quite easily slip into my mouth and direct to the right place just by my fingertips.

A little unpleasant was, when the doc was not sure if we were turning it the right way so far, because my Hyrax is customized and different from the usual one. So he tried to turn it the other way. OUCH! It was not pleasant. It was not nice. It was… well…I could feel the osteotomized bones being pushed to each other. Luckily, he realized it immediately and returned it to previous position. I think I should bite his fingers off or something for that πŸ˜‰

He managed to mess it up a little later again, when he did not realize I have stiched incisions on the inner side of my whole upper lip and lifted it to check it. I gave out a loud “OUCH!” and he winced and said “Oops, sorry.”

But overally, he helped me a lot by checking my palate etc. and telling me everything goes as planned. Also I could have difficulties with my long key, if he did not give me that tiny one and show me how to use it.

So, I am turning on my own now, the doctor just checks if everything is ok. My palate is wider by cca 3 mm by now and expanding. I got a huge gap in between my front teeth and they look crooked, but that is how it will be until they move a little by themselves.

What I hate about staying in hospital is food. I have liquid diet (and will for more 6 weeks at least) and so I am getting really weird stuff. The thing I get for breakfeast is the very same every day. I managed to eat it for 5 days, not anymore. Looks like some sort of very liquid sweet mixture of something in milk. No other flavor except for being milky sweet.

Other food tends to be ok. They usually take what the other patients get for dinner and just mix/mash my portion. The result is usually grey-brown-yellow-ish mixture of strange consistence and even stranger taste, which I usually distinguish as 1) sweet 2)salty 3)salty with something added to it. When the food is mashed into this weird paste, you know what it is, but the tastes are so melted one into each other that it becomes one of the 3.

Anyway, I asked gran for cucumber salad yesterday (very very softly grinded) and enjoyed a tasty meal for the first time this week. I never thought I would be so happy from something as tiny as this.

Another wave of joy came when I realized I can finally move my upper lip again. Yay! I was bouncing around other patients and telling them and showing them, lol. I feel like everything is getting only better now.

If things go well, I will be released from hospital soon. If you have any questions or comments, you are welcome πŸ™‚

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Ok, hello again everyone. As promised, I am going to share my surgery experience. The text below is made from fragments that I kept writing on paper during the last few days and rewrote today. Please, excuse the mistakes and typos. I will check the text when I feel better. Also I made some photos, but I will be able to upload them first when I come back home. They consist of mostly my room pics and pics of one swollen hamster – me.

Anyway, let’s begin.

Thursday – The hospital entering day

I was nervous. The first thing I had to do was to visit my best friend and return her notes that I borrowed from her months ago, so she can graduate, lol. I also brought her a plush crab for good luck with her exams, which will take place when I will be in the hospital. She was ill, so we just talked for few minutes and then I took another bus to the hospital.

I came a little late (hey, I am INFP personality, that is my sacred right), but they did not mind. A nurse took my examinations and x-rays and let me subscribe ton of papers. Then I met a doctor who explained me all the details of the surgery, medication etc etc.

The problem arised, when my main surgeon came and it came out that they have to extract a totally healthy tooth because my dentist wished for it. My surgeon did not agree, I did neither so they argued quite a lot with my dentist. The result was that the tooth will be extracted during the surgery. (As I realised later, my surgeon changed his mind and did not do it, instead finding out a way how to reach the same result while keeping the tooth).

I was really stressed from the argues, hints that I must have known it from before because my dentist must have explained it and whatever.

In the end of it, I felt really bad. I felt like it was me who caused the mess.

Oh, I also realised I weight 60 Kg and measure 163 cm (though the nurse wrote down 165 so I wont feel midget-ish, lol). My plan is to go down to 55 Kg and keep it and I must say that being on liquid diet for few months sounds like the perfect chance for doing it πŸ˜‰

In hospital with Gackt

The night before my surgery was strangely calm. I was given Diazepam in the evening, so I would not stress myself and could sleep well but it merely put me into a strange thinking mood with totally relaxed body and clear mind. Felt like a meditation more than anything else.

It was silent in the hospital. The younger children were given tranquilizers, so they could sleep peacefully, especially because some of them had their surgeries in Thursday, the day before me.

There were 3 other patients in my room. One was a young girl about 10, who did not seem to like me at all, she was to be released on Friday and one 21 years old, who was also long after her surgery and should go home the next day as well. The third was freshly operated on girl who was about 17, and was in a deep sleep when I arrived to hospital. She just returned from her wisdom teeth removal, which seems to be the most common procedure performed here on teens and adults. They perform it under general anaesthesia with sewing and all.

I could see the nurse slip into the room carrying a flashlight and checking on her about twice an hour and giving her different medication in infusion bottles every few hours. I was pretending to be asleep when she was around, because I did not want to be given stronger sleeping pill – I knew I will be drugged heavily the next day, no need to add to it.

I was listening to Gackt’s music on my small MP3 player, letting his ballads from Seventh Night Unplugged and Love Letter CD’s wash over me and keep me company. When I think about it, these two CDs are almost perfect pre-surgery music – they are calming, deep, gentle. There is something in them that I can not grasp exactly, but that really helped me to not stress myself over the next day’s issues.

So I was there. Lying in a metal bed in the biggest hospital in Prague, surrounded by patients and nurses preparing mentally for the surgery that had to take place at 8:15 the next morning, while listening to Gackt’s deep voice. To be honest, the idea that something might get wrong and I might not wake up from my general anaesthesia crossed my mind few times, but I was decided and there was no way out of it. Strangely, I did not even fear it much.

I fell asleep around 1 or 2 am and woke up at about 4 am to Gackt’s song Oasis. My battery decided to die few minutes after in the middle of the song, but I was too tired to switch it, so I just put the MP3 player aside and fell asleep again. Without the music, falling asleep was a little harsher, because I started worrying a little. Anyway, I was too tired to panic anyway, so I managed to sleep till 5 am when the nurse woke me up for another Diazepam and 6 am for temperature check. I had 36 celsius, which is quite low, but then, I am a mutated vampire thingy anyway πŸ˜‰

I knew I will be in the surgery room in few hours, so I did not go asleep again as the other girls in my room did, but instead started preparing myself. I took a long hot shower, brushed my teeth several times using a lot of herbal toothpaste to prevent any possible post surgery infection, tied up my hair and such. I also sorted my things in my cabinet next to bed (just in case I thought) and then laid down with a book and was waiting for the nurse to come with premedication injections.

The surgery

She appeared at about 7:30 and I had to change to white surgery nightie called “angel” in our hospital – it is the coat like thing with naked back. If you ask me, it felt like loose straight jacket, lol. The nurse also bandaged my legs all the way up to my crotch to prevent possible thrombosis from the surgery. Then it was quick. I got two premedication injections, the doctors came to visit me and other patients and then told me it is time and asked me if I have some further questions or something, if I am afraid and such. I told them I am fine and know everything I need, so I was taken to the 6th floor (6,5 floors up) to a huge surgery room. They carried me from my bed to the operating table and I had to strip and was covered by a sterile green blanket thingy. They also fastened a belt around my waist and arms, so I would not fall down.

The worst part was about to come. Canylla’s and transfusion/infusion needles and monitoring. I have really thin veins that tend to rupture, so it took 5 or 6 very painful tries until they hit the right vein that let the needle stay in. They also needed to use the thinnest canylla they had, because anything else did not work. The canylla’s are located on my hand between the fingers and wrist and to be honest, it hurts quite a lot there, even if I am use to have blood taken from that. I was about to cry, when they repeated that my vein ripped again and they need to try again, but somebody held my hand and was caressing it and saying it will be fine. I have no idea who it was, I do not know even if it was male or female, but it felt nice and the last try worked. Before I could look at the person, I got my general anaesthesia and fell asleep.

Waking up

I woke up about 5 hours later in a new room. I got a single room right across the nurses’ station, so if anything happened, they could come immediately. I was one of the heavier surgery patients, not really a wisdom tooth removal one who can go home in 2-3 days.

First things I realised were two thick canylla’s in each of my hand and infusion with something dripping into my vein. My head and jaws hurt like hell, I could not feel my upper teeth and felt like I was run over by an angry bull in heat. All I could taste was disinfection, flood in my mouth and my lips and that my lips were totally dry and sore.

It hurt so much I could not even cry, so I was just whining like a beaten puppy. I was also still heavily drugged, so I could not control myself too well. My nose was bleeding heavily and I was sure something must have gone terribly terribly wrong. I was told it was a minor surgery and no big deal and now….

Waking up again

Fortunately, I fell asleep very soon after the first real awakening and while I was taking the additional sleep, the strong painkillers did their work. I woke up to get another infusion of painkillers, then a shot to stop my bleeding and another against swelling. Then large bottle of antibiotics and then canylla cleaning and sealing something. I think they called it heparine closing. When the infusions stopped, I was feeling quite fine actually. Nothing hurt at all, except opening my mouth too much or trying to smile – if I stayed calm, I felt almost like I had no surgery. My nose was still bleeding (I think they used the right nostril for intubation, because it continued bleeding time to time for about 3 days). I was swollen and somewhat sore, but quite fine.

The first shock totally wore off and I realised I had 3 large incisions in my mouth instead of the planned one (or one and two tiny ones). That was the reason for the horrible first awakening. Due to my unusual condition (Crouzon Syndrome and almost cleft palate), they had to modify the approach during the surgery and also try if the Hyrax screw works and opened it the whole way to check if the teeth will match and all. So, my SARPE with Le Forte I was finished well.

Anyway, except for the painful canylla’s (damn my bad veins once more), I felt great compared to what I expected. I had almost no bruising and the only major thing that kept worrying me was the huge nosebleed (and yes, I did not want my pajama’s with teddy bears stained too, lol). My surgeon stopped by to check on me and said the nosebleed was expected and will stop soonish and if not, that I will get medication into my nose. I did not want that, so I kept using small soft tissues to drain the blood out of the nose and slowly it dried up and was starting only when I moved quickly or elevated my head too much.

I finished reading the book, went through dozens of infusions and was forced to drink at least 10 glasses of tea. That was the requirement or I would get some additional infusions which I did not want. I managed to drink 12 during the day, which paid off and unlike other patients, I had no fever the next day. Going to toilet was a holy quest, but I managed it alone, even if keeping close to the walls. My head was spinning and I could not sleep until 0:30 am, but since I was on a single room, the nurse let me read my book and just kept checking on me. I started reading a third book and was listening to Gackt, Loreena McKennit, October Project and a CD called Songs for the free birds. Most of it was Gackt. I just love his deep voice, especially when I am not feeling well.

Also immediately when I could, I asked for my phone and texted grandmother and my friends that I am still alive and that I am fine. I did not mention the bad first awakening, no reason to scare them and have them worried.

I got sponge biscuits to drip in tea and water-blended baby food apple thingy to eat for dinner. Drinking was ok before, but as I realised, eating was an ordeal. The apples made my palate and whole mouth sore after first few spoons. I ate just about half of it and then some of the water softened biscuits, but at least something. When I did, I stopped feeling sick and my stomach calmed down, so it was good for something.

As for funny moments, I happened to lie on my nurse bell two times and started the emergency call for sisters. I felt so stupid, especially when it happened the second time. But I also needed to have it close to me in case something really happened and I needed the nurse or doctor immediately.

Saturday

Saturday was uneventful. I am not allowed to blow my nose for 4 weeks, so I had to learn how to softly clean it using rolled tissues and such things. I had some hard time with the nosebleeds (and hiding it’s severity from my surgeon who wanted to check it properly = ouch!), but I managed it all somehow. Also sneezing would be really bad for me (one bad sneeze could rip my wound and stitches and keep me in hospital at least a week longer), so I had to learn how to prevent it.

(Oh, damn, nosebleed incoming. Let me stick tissues into my nostrils so we can continue… ok, good now. Hmm, for some reason, I can not stop thinking about Mr. Bean while I am walking around the hospital with huge white tissues in my nose ;))

Anyway, where were we? Ah, yes. I could also eat a normal breakfast (well, if you call a very liquid puree or what it was a normal breakfast) and was allowed to have my right unused canylla removed. Actually it was the less painful one, but when the nurse tried to give me infusions through it, it was stinging like hell, so they decided they will remove it, so I won’t get vein inflammation.

The doctor checked my incisions and stitches (I was dead by fear as I expected something nasty and painful coming) and just praised me for doing well. My stitches and incisions were totally clean, no inflammation, healing and closing well and I had no fever. I had to start cleaning my teeth from that moment, which showed to be quite difficult, provided that I can not feel them, nor can I properly open my mouth. But I was (and still am) doing my best, using a mirror for reference. I also got chamomile extract for rinsing.

I could sleep well on Sunday. The only thing was that I had to wake up for infusions during the night, because my canylla seemed a little blocked and I had to hold my hand in a specific position to be able to get the medications without having to remove and attach the canylla once more (which would mean more tries in my case and I did not want that). Midnight infusion was the scariest one – the canylla got blocked totally, but a brave nurse pressed the infusion bag a little and cleaned it. Ouch! Very very very ouch! But it saved me from having the needle reattached, so bless her.

Oh, I almost forgot. My grandmother and my boyfriend came to visit me today, which was really sweet of them. My bf even brought me my notebook and games. How can one not love that guy? πŸ˜‰

Funny moments: When the nurse came at midnight, I almost jumped out of my bed saying: “Oh, it is morning already?! Oh my gosh, it is morning!” and she had to put me back to the bed and explain that I am just getting antibiotics and that the light is the lamp above me.

Post-op sarpe profile

Post-op sarpe

Canyla

Not much swelling yet

Right canyla removed

 

Sunday

Today. Well, what can I say? Well, my painkillers stopped being served. Ouch. I can feel the incisions, but I am getting pills, so it is not so bad. I feel the wound fully for the first time (except the first awakening) and it is sore and tense, but no big deal unless I smile, talk or eat. Oh, rinsing and tooth brushing is a little painful too, but bearable.

I got called for check and one of the doctors cleaned the wound and stitches using… well… peroxide. OUCH! Hurts. I was trying to be brave, but one of the nurses told the doctor I am not as fine as I say and that I asked for painkillers in the morning, hmmm…

If things go well, I can have my second canylla removed on Monday and finally take a proper shower and wash my hair.

Also I should have an appointment with a renomed plastic surgeon who is working with my main reconstructive surgeon very often and would not mind to give some advices for my second and third surgery in the future – which, if things go well, could be even blended in one.

Funny moments: People are starting to call me teddy-bear thanks to my super cute and very infantile pajama covered with yellow teddy bear pictures.

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Strange facts:

Strong antibiotics work for my acne. No new acne appeared, even if my face was violated in many horrible ways during the surgery and I really expected a huge breakout. I wish it stayed so clear and rosy. (Update from 1 month post op: The acne is back :()

You can get vein inflammation if you feel that your canylla hurts. Be careful about that and tell it to your doc if it happens.

If you are all swollen and fed hamster like looking and your bf comes in and says “oh, you look different, somehow better”, do not kill him. He probably just thinks you had something else done and wants to be nice, lol πŸ™‚

Pics:

 

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