So, lets see an overview of my fight with Crouzon syndrome. I borrowed some characteristics from some websites Characteristics often associated with Crouzon Syndrome: Flattened back and top of head – can not be repaired, even though I had a skull surgery as a 2 years old baby (when we count surgeries, this one would [...]
Archive for the ‘Plastic surgery’ Category
Fighting the illness
Posted in Crouzon syndrome, Health, Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery on January 19, 2010 | 4 Comments »
1st June: Off to the hospital once again
Posted in Blogroll, Crouzon syndrome, Health, Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery, Work, writing on May 31, 2009 | 3 Comments »
My teeth are lined up and ready for a new surgery – a maxillary advancement in a Le Fort I line. In other words, they cut my upper jaw off in the same place they did before, but this time they move it forwards and give me an actual bite. I mean hey, I have never had a bite that really touches, it will be a completely new thing for me. Also I am hoping that it will stop all the annoying headaches and migraines I have been having all day the few last months. If things go well, no more dizziness, no moer headaches, no more extremely sore jaws. It will feel like heaven 
Alive, working, writing
Posted in Crouzon syndrome, Health, Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery on March 3, 2009 | 3 Comments »
It seems that I am really neglecting this blog, but the truth is that I do not have much to write about. I am very busy at the moment with my dayjob as a legal secretary and trying to finish my book and screenplay in the spare time. Seriously, sometimes I feel like I needed [...]
Coping with stuff
Posted in Crouzon syndrome, Health, Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery, Uncategorized, Work, tagged Candar, crouzon, Crouzon syndrome, facial surgery, Gackt, Kiseki, Lady Candar, myspace, Plastic surgery, project, SARPE on June 29, 2008 | Leave a Comment »
Life is going decently, that is why I havent been posting here for a while. The job showed to be really nice and I must say I love it. I was also able to finish one of the difficult scenes in my screenplay and am almost done with the story (only about 145 pages of [...]
Expander removed! ^___^
Posted in Crouzon syndrome, Health, Life, Plastic surgery, reconstructive surgery, Work, tagged Crouzon syndrome, openbite, RPE removal, sarme, SARPE, sore teeth, surgery, underbite on March 29, 2008 | 1 Comment »
It’s out! After 6 months, it is out! At the 20th March, I spent about a hour in the dentist’s chair and was getting my Hyrax out, teeth de-cemented and new bands applied on my molars. To be honest, it was not the most pleasant experience, even with 800mg of Ibalgin taken before I went [...]
Getting better
Posted in Health, Life, Maxillofacial surgery, Plastic surgery, Uncategorized, tagged bi-max, Bimaxillary Advancement, bone fracture, complication, complications, Dental surgery, healing, hospital, Hyrax, maxfac, Maxillofacial surgery, Maxillomandibular advancement, medical information, pain, rare, real life rayman raving rabbid, SARPE, sarpe complications, scary doctors, stress, Surgically Assisted Rapid Palatal Expansion on September 27, 2007 | Leave a Comment »
Ok, yesterday was a real nightmare that lasted till today’s morning. When my bf came home from work, I was sitting there and shaking, having some sort of shock from another microfracture of the palate. I do not know if I was more scared or in pain or just feeling like the most unlucky being [...]
Bone fracture – in pain, scared and worried
Posted in Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery, Uncategorized, tagged bone fracture, complication, complications, Dental surgery, healing, hospital, Hyrax, maxfac, Maxillofacial surgery, medical information, pain, rare, SARPE, sarpe complications, stress, Surgically Assisted Rapid Palatal Expansion on September 26, 2007 | 2 Comments »
Ok, today did not go well. Not at all. I woke up at 9am to brush my teeth and turn the screw. I wanted to go to sleep a little more after, but things went terribly wrong. As I was brushing my teeth, I felt sharp pain that came with something breaking inside of my [...]
Turning the screw
Posted in Health, Life, Maxillofacial surgery, Plastic surgery, Uncategorized, tagged , arched palate, Beauty and attractiveness, Braces, class III, cleft palate, crossbite, Crouzon syndrome, Dental surgery, Health, Hyrax, Life, maxfac, Maxillofacial surgery, palate expansion, palate widening, Plastic surgery, reconstructive surgery, SARPE, turning the screw on September 22, 2007 | Leave a Comment »
Sorry for the delay, I was not feeling well. Delayed post surgery shock creeped on me and I also happened to have stomach problems and headache, so I spent most of my time in bed. I just would like to say that this is not a common complication and even doctors were surprised. We also [...]
A bad bad night
Posted in Crouzon syndrome, Health, Life, Maxillofacial surgery, Plastic surgery, reconstructive surgery on September 17, 2007 | Leave a Comment »
Yesterday’s night was bad. Really really really bad. I spent most of it with a finger on emergency button, waiting for something bad to happen. Luckily, it did not. I was sore, my neck, head and chest hurt, so did my canylla and both hands. I could not breathe well and overally felt like hit [...]
My SARPE surgery with Le Fort I
Posted in Crouzon syndrome, Health, Life, Maxillofacial surgery, Photos, Plastic surgery, reconstructive surgery, Thoughts, Uncategorized, tagged arched palate, beauty, before surgery, Braces, class III, cleft palate, crossbite, Crouzon syndrome, Dental surgery, doctors, facial plastic surgery, Gackt, Gackt's music, healing music, Health, hospital, Hyrax, Life, Loreena McKennit, maxfac, Maxillofacial surgery, Motol, music before surgery, nurses, October Project, painkillers, palate advancement, palate expansion, palate widening, Plastic surgery, Prague, reconstructive surgery, SARPE, turning the screw on September 16, 2007 | 14 Comments »
Ok, hello again everyone. As promised, I am going to share my surgery experience. The text below is made from fragments that I kept writing on paper during the last few days and rewrote today. Please, excuse the mistakes and typos. I will check the text when I feel better. Also I made some photos, [...]
INFP personality type – “dreamer”
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