It seems that I am really neglecting this blog, but the truth is that I do not have much to write about. I am very busy at the moment with my dayjob as a legal secretary and trying to finish my book and screenplay in the spare time. Seriously, sometimes I feel like I needed at least few months of vacation to finish it, but even like this, I am getting closer and closer to the end. Only few dozen pages and I am done.
As for my surgery, I am still waiting. I got some bad news from my ortho at the last visit – it seems that one side of my jaw is relapsing no matter what they do, so they keep postponing my next surgery and adding more and more wires to my mouth. I have some hope that my teeth and jaw could be prepared by the start of April, but by the way she said it, my next surgery wont happen sooner than in May or June. 
There are moments when it is really annoying, because I can not plan anything at all until I have the date. There is a conzert of Yamato drummers in Prague, but guess what? Yes, I will be “probably” at hospital during that time… sometimes, I really wish I had it all behind me and could just look back and say “Whew, its done and I survived with flying colours, yay!”
Anyway, end of the rant and back to writing.
I hope everything turns out ok for you… Good luck in whatever you do!
i had a similar type of surgery, but not a lefort. i was born 3 months premature and as a result of being laid ON my face and the sides of my face, my face was flat in the front and sides, pretty much like it got squashed and stayed that way. i had reconstructive surgery to fix this and now i look normal..better than normal! who would have thought. i used to get stared at for being funny looking and the other kids wouldn’t play with me. i understand so much what you’ve been through and i think doing surgery is absolutely the right thing to do in this type of situation. there are people who will say that it isn’t but i know that every day i get up in the morning i am so damn happy to look normal, even pretty! it’s something that sticks for the rest of your life and is more than worth it. i am so happy with how i look now, and it has affected all aspects of my life…social and emotional. i’m so happy that i’ve decided to dedicate my life to this and become a facial reconstructive surgeon myself. to anyone that has a facial deformity and is seeking to fix it, GO FOR IT. it was so painful, but do i regret it? not for one second!
to the owner of this blog, i’d love if you could email me and we could get to know each other. i don’t know anyone else who has had similar problems as i did or who went through surgery for it. i included my email in the mail section <3
hi… your history is very intersting and emotive. I have a crouzon too but i needed 3 “Lefort 2″ surgerys for correct it (at 2 yers old, at 15 and finally at 17 yers old). But it seems that i need more becouse my problem is very difficult.
Now I have 22 and i walk by the life highway and I never never talk with a person who have the same problem. for example about the social life (for me it has been difficult) or something like that… please
melvinlope@gmail.com