So, you wonder why I started this blog and why I inted to bother you with my mundane experiences? Do yo have a burning desire to come out of the clo… err, I mean to get this information? Fine, have it.I was born with Crouzon syndrome and managed to survive 25 years with it. As for now, I decided I do not want to live like that anymore. I do not want to be turned down at job reviews because of the way I look, I do not want to be considered a retard by people who see me for the first time. I do not want to be “different”, which is most of the time another word for ugly.
So I set up for this journey. A journey that should help me change my visage as well as treat my health problems caused by a congenital syndrome. It will not be easy, but I believe that things will be well in the end and it will be worth the ordeal.
I hope that this blog could help people who suffer from similar problems that I do and maybe might help them to decide to change their situation as I did.
Here are some pictures to show how I look by now.
Wishing you all the best for September, hope your surgery goes well. I admire your frank and honest approach, none of the ‘poor me’ attitude that is so frequently found in people with far fewer hurdles to face, I’m sure your depth of character will continue to get you through all your operations and hopefully you’ll soon be out the other side smiling. Take care.x
Hi, My name is Mélanie
My daugther Suzanne have Crouzon syndrome too.
Good luck and pleasure for your life.
Mélanie
wish u happiness all time…
Hey! I am really impressed with your strenght and optimism to deal with your life’s problems. I’m totally sure that your life will be pleasant and full of happiness, ‘cuz being this strong is really rare nowadays. Wish you all the luck! You deserve it ;D
Diogo, from Portugal
Thanks for the information!
I work in a hospital and just worked with a kid with Crouzon Syndrom.
Your information was great!