Teeth still not done, Hyrax still not on…

Ok, yesteerday was a real nightmare. The doctor who attached the spacers did it wrong. He could not fit them in between the right teeth, so he just put them on 2 places (I asked about that, but they said it is ok). My dentist was furious when she found out, I think the young [...]

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Lazy, sleepy

I was up to 2 or 3 am last night. I suspect the later, but am not sure, lol
I got up at 11am when my alarm started ringing and crawled to my pc (well, bf’s PC *cough, cough*). Then I had breakfeast lunch, finished my chocolate from last night and started browsing the [...]

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Tooth spacers are in, 2 days to Hyrax

I got my tooth spacers yesterday. They look like tiny blue rings and are placed between my teeth to make some space for the metal bands of Hyrax appliance that should be atached on thursday.
Most websites say that they do not hurt. Well… they do not hurt too much.
I got them installed by another dentist, [...]

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Surgery postponed… again…

Ok, I should go and have Hyrax application attached to my upper jaw. As usually (I am almost getting used to it), the surgery on monday the 27th has been postponed, because somebody forgot about something.
It seems that somebody forgot to call me a week ago and invite me for some preparation that I should [...]

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The mystical non-existent thyroid disease

It does happen very often. Actually, there usually isn’t a month without somebody stopping me on the street and saying “Oh, sorry to stop you, but I see that you have a serious thyroid problem. You should visit a doctor immediately.”
Usually, I just smile and shortly explain that I happen to have a genetic disease [...]

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Just another day in my life

Today was a really really tiring day. I am starting to be stressed because of the surgery and all the things I need to have done before it.
I spent few hours in the employment office in our town, where I had to register because I will be jobless for a while. Thanks to the nice [...]

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Living with Crouzon syndrome

I wont write a long essay about Crouzon syndrome here. I am not an expert and a lot has been written on the subject on other sites. For example http://www.craniofacialcenter.com/book/craniosynostosis/cranio_8.htm or http://crouzonsupport.org/faq.html have great resources.
What I want to write about is my experience with it. I was diagnosed with the syndrome as a baby and [...]

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Why I decided to blog

So, you wonder why I started this blog and why I inted to bother you with my mundane experiences? Do yo have a burning desire to come out of the clo… err, I mean to get this information? Fine, have it.I was born with Crouzon syndrome and managed to survive 25 years with it. As [...]

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